Data Quality Dashboard

Lyme disease is estimated to be 10x underreported according to the CDC. Actual case counts may be 300,000+ annually versus the ~30,000 reported through NNDSS. This affects all prevalence-based calculations.

ICD-10 codes vary significantly by provider practice and region. ME/CFS lacks a specific diagnostic code, leading to miscategorization under neurasthenia (F48.0) or other fatigue codes. This creates systematic undercounting.

Rural areas have less comprehensive reporting infrastructure. States with fewer public health resources may have reporting delays of 6+ months. County-level data is unavailable for approximately 19% of U.S. counties.

CDC surveillance data has a 6-18 month reporting delay from case occurrence to public availability. CMS claims data lags by 9-12 months. This means the most recent data reflects conditions from 2023 or earlier.